Home Sweet Home

There can be nothing nicer than the feeling of sleeping in your own bed when you have been away from it. The simple comforts and familiar things that just make you feel like you are home. I’ve managed to finally get discharged from hospital at long last and now it’s just a case of trying to stay well enough to not end up back in so soon!

Don’t get me wrong, I still have a temperature on and off and I’m still not 100%… However, I can’t live my life in hospital. There is a point when I just need to live my life, if I get worse then so be it. I am very lucky that I am seen by a community respiratory team where not only do I have an advise line but I also have a personal respiratory nurse who visits me at home and now that i am home she will come and visit me, catch up on everything and then I can start organising check ups with my doctors etc to then manage me so i don’t end up back in. My poor nurse has the hardest job, keeping me home.

Here’s to seeing how long I can go staying OUT of hospital… 1757211451-89b21664b6bd21109fa2eee1a555f747

 

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4 thoughts on “Home Sweet Home

  1. LydiaA1614 says:

    I haven’t been hospitalized much in the past 10 or so years, but prior to that I often spent months at a time for either physical or mental reasons. I totally understand where you are coming from. I also spent much of the four years my father lived with us in the hospital with him. I didn’t stay over (I did once or twice). He suffered from asthma and COPD and died from complications of a swallowing disease that aspirated food into his lungs. It causes “aspirating pneumonia” which is difficult to cure with antibiotics. I inherited his asthma, was recently diagnosed with COPD (because of chronic bronchitis in my youth and a collapsed lung at 33, not so much smoking). Plus, I go in two weeks for tests to see if my swallowing problems are what are causing my constant chest congestion. It is scary having breathing problems, isn’t it? I have many more conditions that, until now, were worse than my asthma, etc. I really look forward to following your blog and learning from you. I don’t have great concentration anymore for medical sites. If I can read it in an informative blog I am very happy!

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    • asthmawontbeatme says:

      Yes, I too suffer with other things but I didn’t want to complicate things too much. I’ve just realised in this past year many things. One that there is still a huge stigma behind asthma – when people think asthma they think of that nerdy geek having a panic attack and using an inhaler, which instantly relieves their symptoms. Most people – even those WITH asthma, don’t know much about asthma, the realistic sides of asthma… ie it’s not the odd asthma attack that will probably have the biggest effect in your life but the fact that every cough and cold will probably take 2 times longer to heal from, and that each one will probably turn into a chest infection. I realised it’s just so little understood and people still hide having asthma and don’t openly talk about it which just keeps it a hidden illness. I think by encouraging people to be more open about their asthma and by them learning the more realistic truth about what asthma can be like it will change the misconsceptions people have about it, they might take it more seriously and in understanding it more, hopefully there are less fatal asthma attacks and severe asthma attacks. When i was in hospital lots, nobody ever really explained why anything was happening. I never understood how i could go from one extreme to the other and be so ill with my asthma… I found a couple groups on facebook and since then it’s changed my life. I had people telling me their sides of asthma, how THEY dealt with the same issue, and just gave me loads of information on why stuff happens and loads of advise. I learned so much, and by learning so much i was better able to manage and understand my asthma and more importantly accept it for what it was. So that’s why i wanted to do this, because you are right. information pages aren’t much use. reading a list of symptoms about depression and stuff or about any illness or disease is just information that doesn’t stick. Reading about someone’s experience with it, how they dealt with it, how they got passed it is far more useful than just pure facts. Plus sometimes hearing the blunt truth good or bad because when you don’t expect something and it happens you can’t be prepared for it, you can’t deal with it in the same way as if someone told you the honest truth. Like say with Depression, you can hit a huge low in your life… worst one you’ve ever had. That life changing one that makes you look up because you’ve hit rock bottom. People never explain that yes you can start to really get positive after that and improve but depression doesn’t go anywhere, it’s always there. You are still going to have ups and downs (probably many more downs than you realise), but it’s knowing you dealt with the what felt like worst time and that you coped and you made it through so that you know you can deal with many other bad times. People don’t tell you that depression is often a life long thing, yes you get bad phases but wuite often there will be more to come in your life, it’s just being better prepared for them and handling them better. That’s the useful information, not you get depressed and then you get better and thats it.

      Ps- i look forward to following your blog too!

      Liked by 1 person

      • LydiaA1614 says:

        Wow, I think you and I could talk for hours! We have a lot of the same views on our illnesses, like being pro-active and not waiting around for someone to explain things (after all it is very difficult for us asthmatics to hold our breath that long 😉 ). I also suffer from anxiety and my original inhalers were Salbutamol and Advair. I was told to take my Salbutamol when having an asthma attack, as needed. I would take it, the attack would get worse. I would wait a few minutes, take it again and the attack got worse. On one occaision my husband said “that’s it we are going to the hospital”. They gave me a nebulizer with salbutamol and I went into full on panic mode which left me totally unable to breath. After they got me settled down with oxygen, they called in a respiratory doctor. He noted that I had depression and bipolar. He asked if I also suffered from anxiety and panic disorders and when I said “yes”, he grabbed the nurse and there were a bunch of them standing around getting chewed out by the respirologist. He then came back over with a different nebulizer and said they were going to give me three treatments with a half hour between and that should get me back on track. He also gave me a prescription for a new emergency inhaler and nebules (I got my Dad’s home nebulizer when he passed). When he was gone and the nurse came to hook me up, I asked what happened. She said that people with anxiety disorders can react to large doses of steroids and that after the first attack the specialist should have been called in. You mentioning the steriotypical asthmatic reminds me of a friend who was really bad and the gym teacher told him that was just an excuse to be lazy during gym class!

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      • asthmawontbeatme says:

        The best phrase is always ‘oh it’s just asthma’ or ‘calm down and take a deep breath’ yes because if i could do that i wouldn’t be in this situation, and it’s just asthma, something that can kill you. yeah alright! You are very lucky that you had such a good doctor who took note of your other conditions and put 2 and 2 together. All it takes is one good doctor with a brain!

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